Supporting Grace Through Tree of Hope To Create The Very Best For A Beautiful Curly Girly!
Grace is a beautiful, cheeky and happy little girl with blond curls and a big grin. In July 2018, after in depth testing with the research project and appointments with a Genetic specialist from Great Ormond Street Hospital, Grace was diagnosed as having a mutation of the gene RHOBTB2 (c.1448G>A). This gene has only recently been linked to epilepsy and Grace is currently only one of around 21 people diagnosed around the world, possibly only the 3rd within the UK. We hope that Grace will create her own path, but we want to do our absolute best by her and give her every opportunity to thrive. Grace has a Facebook Page and a Just Giving Page and we hope to support her family in raising valuable funds to help her and others like her.